Indicleft Task Force Project

Cleft Lip and Palate anomaly in India: Clinical profile, Risk factors and current status of treatment: A Hospital based study – Main phase

Funding agency: Indian Council of Medical Research, New Delhi

History

Preliminary work of the task force project has already been undertaken in the form of pre-pilot and pilot study (2010-2015) wherein a study tool was designed to record the clinical profile and the treatment status of cleft lip and palate subjects. It was observed that in the sample of cleft patients assessed in the project, the treatment needs were high. There seemed an urgent need to devise strategies to improve the delivery of quality care with joint efforts of all experts and health care providers.

 

Objectives

                        i.      Identify pattern of the congenital birth defects of face, cleft lip and palate PAN India.

                      ii.      Establish NATION WIDE data of spectrum of problems of cleft patients, protocols of treatment given to these children and their actual treatment needs.

                     iii.      Ascertain risk factors associated with congenital birth defects of face: nutritional, environmental and genetic

Ultimate objectives areto initiate a National Registry for the patients with congenital birth defects of the face and jaws and to establish strategies that will address multitude of challenges associated with the prevention and treatment of this deformity.

Duration of the project: Three years

 

Organizational setup of the project

 

 

Principal Investigator

 

 

Prof. OP Kharbanda

CHIEF: Centre for Dental Education and Research
Professor and Head, Division of Orthodontics and Dentofacial Deformities
All India Institute of Medical Sciences, New Delhi 110029, India
Director, WHO-CC on Oral Health Promotion
National Centre of Excellence for Implementation of National Oral Health Program

 

Co- Principal Investigators from AIIMS

Prof. SC Sharma Professor and Head Department of ENT, All India Institute of Medical Sciences New Delhi 110029	Prof. Maneesh Singhal Professor and Head Department of Plastic Surgery All India Institute of Medical Sciences New Delhi 110029
Prof. MadhulikaKabra Professor and Head Division of Genetics, Department of Pediatrics All India Institute of Medical Sciences New Delhi 110029	Prof. Rajesh Sagar Professor Department of Psychiatry All India Institute of Medical Sciences New Delhi 110029
Prof. RM Pandey Professor and Head Department of Bio-Statistics AIIMS New Delhi	Dr. Sushma Sagar Additional Professor Department of Surgery,Trauma Centre, All India Institute of Medical Sciences, New Delhi 110029
Dr. Neerja Gupta Assistant Professor Division of Genetics, Department of Pediatrics All India Institute of Medical Sciences New Delhi 110029	Dr. Shashank Chauhan Assistant Professor Department of Plastic Surgery All India Institute of Medical Sciences New Delhi 110029
Dr. Shamendra Anand Sahu Assistant Professor Department of Plastic Surgery All India Institute of Medical Sciences New Delhi 110029	Dr. Vilas Samrit Assistant Professor Department of Orthodontics, CDER All India Institute of Medical Sciences New Delhi 110029
Dr. Prabhat Kumar Chaudhary Assistant Professor Department of Orthodontics, CDER All India Institute of Medical Sciences New Delhi 110029	Dr. Deepika Mishra Assistant Professor Centre for Dental Education and Research All India Institute of Medical Sciences New Delhi 110029

 

Co- Principal Investigators from other centres

Prof. AK Singh

Professor and Head

Department of Plastic Surgery

King George's Medical University

Lucknow, Uttar Pradesh -  226003

 

Prof. Srinivas Gosla Reddy

Director

GSR Institute of Craniomaxillofacial and Facial Plastic Surgery,

Hyderabad, Telangana-500059

 

Dr. Vinod Scaria MBBS, PhD
Scientist, G N Ramachandran Knowledge Centre for Genome Informatics, (CSIR-IGIB),
South Campus, Mathura Road,
New Delhi 110020

 

Co- Principal Investigators from NIC

Dr. Savita Dawar

Scientist F, CollacCAD Group,

National Informatics Centre,

New Delhi- 110003

 

Resources:

1. ICMR Task Force Project Report – A preliminary report of a three- centre study (https://www.researchgate.net/project/Cleft-Lip-and-Palate-Anomaly-in-India-Clinical-Profile-Risk-Factors-and-Current-Status-of-Treatment-A-Hospital-Based-Study-Mainphase)

 

 

 

 

 

 

 

 

 

Cleft Lip and Palate Anomaly in India-Task Force Project Report